Our sweet JP was diagnosed with Acute Lymphoblastic Leukemia - ALL - on February 24, 2012. This is his story.

Tuesday, May 15, 2012

Interim Maintenance 1 - Day 11

We had our second treatment in phase 3 last Friday. We had bloodwork on Thursday to make sure he is heathly enough for treatment and he was so we went ahead and kept our appointment on Friday. While we were getting ready to head out, JP grabbed his football and insisted I put it in my bag "in case my nurses want to play." He is the cutest kid! Always thinking of how to make others happy.

It was a fairly easy treatment day. We had the check up with the doctor, got his port accessed and went back to receive his chemo. He is receiving two types of chemo right now - Vincristine and Methotrexate. The Vincristine is given in the same dosage it's always been given but the Methotrexate dosage is increasing with each visit. He seemed to handle them both well, but he always does. He is amazing.

Again this week, he didn't want to sit still during treatment. I had to follow him around with the machines again...


He loves to be in charge of the camera. Here is his point of view this week:

Dad playing the iPad

The nurse trying to catch him (the purple blur is a chemo glove. The nurses have to suit up and wear special gloves when they are administering chemo.)

Mom and JP toes

 And then we met Spiderman. Turns out even superheroes have to visit the doctor once in a while.

Of course, at the end of each treatment we have to stop by the fountains and make a wish. Can you guess what Josh and I wish for every single time? :)

All tuckered out. It's tough to be so brave every week. Notice he's still holding onto his mask. Such a good boy.

We met a 10 year old and his mom in the infusion area (where chemo is given) and found out he has Ewing's Sarcoma (a bone cancer) in his heel. He will have to have his leg amputated. My heart aches for them and the journey they have ahead of them. I feel like every time I meet someone new my heart aches a little bit more. I really hate that our cute kids get cancer and have to deal with so much at such a young age. Someone told me once that "only mean, old people should get cancer, not our precious babies!" and while I don't think anyone should get cancer, I semi-agree. Cancer is a mean, ugly thing.

1 comment:

  1. He really is the sweetest little guy! I totally agree about the quote at the end! Not our sweet babies! It really is such a mean, ugly thing. Is that Spiderman a statue? It looks plastic, so if it's not that is some major dedication to wear that suit! Miss you guys!

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