Update

So we've been doing IV antibiotics with JP every 8 hours for the last 10 days and blood draws every Monday, Wednesday and Friday to see where his ANC is. He was supposed to be on the antibiotics until his ANC reached 500. Yesterday he got to 400 and Dr. Lemons said his other numbers were going up enough that he felt comfortable stopping the antibiotics. We were able to deaccess JP and he wasn't thrilled with Mom & Dad yanking a needle out of his chest, but I think he's happy not to have that thing in the way anymore. Now we just wait for more blood work on Thursday to see if we can start the new phase of treatment. His ANC needs to be at least 750 for that, so it's not likely that we'll start this week, but you never know.

His white blood cells, red blood cells, hematocrit and hemoglobin levels are still really low. He's been borderline for a blood transfusion for almost a week now, but he's been acting so normal that we've been holding off. If he starts acting extra tired and isn't as active we'll take him in for some new blood.

He's been throwing major tantrums, especially at bedtime, and ever since a couple nights before he was admitted he's insisted on sleeping in my bed. Let's just say none of us are sleeping well. Well, JP is sleeping soundly but Josh and I are not. That's the problem with a 1 1/2 bedroom apartment - if he starts into one of his tantrums, he'll wake up Elsie and then I'll have two upset kids that aren't sleeping... At some point I'd love to have my bed back! Last night by some miracle Josh got JP to go to sleep in his bed and sometime between midnight and 2 am he crawled into my bed. I had hope but that didn't last long. I have a theory that he can't sleep in a hot room (who can?) and since the kids only have fans and our room has AC I wonder if that's part of the problem. I really have no idea but we've got to nip this in the bud and fast!