Here he is the night we were admitted, 4 weeks ago:
Here he is 2 weeks into treatment, 2 weeks ago:
(I love this picture - he picked out his own outfit!)
And last night, picking his nose and performing his "Sexy Know It" dance:
We are nervous for our appointment on Friday. It's the big one - another bone marrow biopsy to see if there is evidence of any more leukemia cells in the marrow. If there are... it's not going as well as we hope it would and treatment intensifies in frequency and dosage. If there aren't then HOORAY! and we will move into the next phase of treatment called Consolidation. I don't know what that entails but I do believe it means no more steroids. Yesterday JP woke up and ate a bowl of Fruit Loops. Immediately after finishing he told me he wanted mac & cheese. I told him we will have that for lunch. He yells and screams at me for mac & cheese and finally I set a timer. I do this once in a while so he can watch the numbers count down and look forward to something. Unfortunately for him, I set the timer for 85 minutes. He knew that was a long time to wait. I told him it's tough, but it is what it is. A little later I was changing Elsie's diaper and he started into his fit again, climbed off the couch, kicked me, yelled "MINE MAC & CHEESE!" then climbed back onto the couch. I laughed because he intentionally climbed down to kick me. Who does that? I know it's the steroids and it was only funny because the kick didn't hurt and he thought that would make me get his lunch faster. Oh boy, have I mentioned I can't wait to be done with these steroids?
We will be fasting on Friday with our cute boy. He can't eat until after the surgery (another reason I'm nervous for Friday - a starving 2 year old on steroids! Yikes...). Anyway, we would appreciate any thoughts and prayers sent our way. Fingers, toes, arms, legs, I'll have everything crossed!
What cute chipmunk cheeks! Crazy how much he's changed in just a few weeks. Good luck with everything today.
ReplyDeleteYou should have made him the dance with his shirt off so we could his tummy!
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